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Etiquetas: Andalucía, Atención; Personas, Carmen Cafranga Cavestany, Cataluña, Comunidad de Madrid, Comunidad Valenciana, Comunidades autónomas, Enfermedades raras, ER, Estudio ENSERio2, Extremadura, Febrero 2013, FEDER, Federación Española de Enfermedades Raras, Fundación Especial Caja Madrid, Fundación ONCE, Iniciativas sobre ER en España, Juan Carrión Tudela, Madrid, Modelo sanitario, Participantes en el Estudio, Propuesta de un Modelo de asistencia sanitaria de las personas con Enfermedades Raras, Región de Murcia.
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