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Etiquetas: 1º Dia Europeo, 26/02/2008, 260febrero 2008, 29 febrero 2008, Agencia Europea de Medicamentos, Committee for Orphan Medicinal Products, COMP, Comparativa de designaciones y autorizaciones de medicamentos huérfanos en la Unión Europea y en Estados Unidos, Consejo general de Cólegios oficiales de farmacéuticos, EMEA, Enfermedades raras, Las enfermedades raras en España, Ley de Medicamentos Huérfanos, Madrid, Medicamentos huérfanos en la Unión Europea y en Estados Unidos, Medicamentos huérfanos registrados en la Unión Europea 2007, Medicamentos huérfanos y enfermedades raras, OEER, Organización de ámbito Estatal de Enfermedades Raras, Organización Mundial de la Salud, Orphan Drug Act, Rueda de prensa, salud, Sanidad, Un dia único para personas únicas.
Etiquetas: 26 febrero 2008, 26/02/2008, Afecta a menos de 1 de cada 2.000 personas, Anemia de fanconi, Asistencia social, Asociaciones de Pacientes, Conocimiento médico, Déficit, Día Europeo de las Enfermedades Raras, Dolores crónicos, Enfermedad de pompe, Enfermedad de wilson, Enfermedades raras, Esclerodermia, Esclerosis Lateral Amiotrófica, EURORIS, Fármacos costosos, FEDER, Federación Española de Enfermedades Raras, Fibrosis quística, informe, Joubert, Leucodistrofia, Leucodistrofias, Madrid, Miopatía de duchenne, Nevus Gigante Congénito, Osteogénesis imperfecta, Paraparesia espástica familiar, Patologías mitocondriales, Rare Diseases Europe, salud, Sanidad, Síndrome de apert, Sindrome de tourette, Sistema Nacional de Salud, Situación de España con respecto a Europa, Situación socio-laboral, Vasculitis Sistémica, ¿Qué pasa en Europa?.
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